In Conversation Series: Writers for Rare

In conversation with the Writers House and Prevention Science, Mariah Scott and Patricia Geurds will read from and discuss their contributions to the book Writers for Rare: An Anthology of Personal Stories from the Rare Disease Space.

Nearly 10% of the population lives with a rare medical condition, yet the personal experience of the rare disease journey often remains misunderstood or overlooked. Writers for Rare is an anthology of thirty-two stories told from different perspectives in the rare disease space: patients, caregivers, medical professionals, and industry allies. This book challenges assumptions and invites deeper understanding of the rare disease odyssey. It’s especially relevant for anyone living with or writing about a rare or chronic medical condition, navigating a life-altering diagnosis, caring for someone who is, or involved in the development and delivery of new treatments.

Refreshments will be provided. Enter at the rear door of the Writers House and proceed up the stairs to room 202. Registration is encouraged.

Registration encouraged: Register